endometriosis impact questionnaire pdf

The Endometriosis Impact Questionnaire (EIQ) is a self-report questionnaire which asks women how endometriosis has affected their lives over the three recall periods including last 12 months, 1 to 5 years ago and more than 5 years ago. Endometriosis reproductive health questionnaire (ERHQ): A self-administered questionnaire to measure the reproductive health in women with endometriosis. Res Nurs Health. 0 0 9.949 9.426 re endstream endobj 150 0 obj <>/Subtype/Form/Type/XObject>>stream Convenience and snowball sampling were used to recruit a sufficiently large number of accessible participants, with an emphasis on those residing in Australia. The readability of the EIQ based on the Fog index [21] and Readability Formulas [22] were used. xmpTPg By clicking accept or continuing to use the site, you agree to the terms outlined in our. endstream endobj 184 0 obj <>/Subtype/Form/Type/XObject>>stream endstream endobj 244 0 obj <>/Subtype/Form/Type/XObject>>stream t: 020 7222 2781 information@endometriosis-uk.org www.endometriosis-uk.org Endometriosis UK is a registered charity No. Matsunaga M. How to factor-analysis you data right: Dos, Donts, and How Tos. Gaskin CJ, Happell B. Grant JS, Davis LL. https://doi.org/10.1016/j.bpobgyn.2004.01.003. endstream endobj 200 0 obj <>/Subtype/Form/Type/XObject>>stream Conformance level of PDF/X standard endstream endobj 217 0 obj <>/Subtype/Form/Type/XObject>>stream H237402VH2P0P4&F H237402VH2P0P4&F seriesEditorInfo E\\y\FzFfP\.s=3sS#&U) http://orcid.org/0000-0002-9084-8907 Endometriosis Health Related Quality of Life Social isolation Sexual Life Work productivity Mobility and daily activities Well being Praticians Incomprehension Side Effects Limits Introduction 2 Introduction *Patient reported outcome 3 Simple design easy to fill for the patient Scoring system permits a PRO* measurement Not time consuming Qual Life Res. The authors declare that they have no competing interests. E\\y\FzFfFP\.s=3s#(&Q/ H*2T0T04T040R(J E\\y\FzFfP\.s=3sS#&U) internal H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  Specifies the types of editor information: name and ORCID of an editor. Before Conclusions: 0 0 9.949 9.426 re Saunders Elsevier; 2013. f CAS endstream endobj 136 0 obj <>/Subtype/Form/Type/XObject>>stream 0 X)A Using the recall period of last 12 months, could be used in clinical trials and to investigate outcomes. eCollection 2022. The Endometriosis Impact Questionnaire (EIQ): A tool to measure the long-term impact of endometriosis on different aspects of women's lives Authors: Maryam Moradi Mashhad University of. 2019-05-14T16:19:31+02:00 Seq Text The EIQ was developed from focus group discussions, along with an extensive literature review, which ensured that the items are relevant to patients from either tertiary care or the community. The W ork Productivity and Activity Impairment Questionnaire demonstrated construct validity and repro- 2.3.3. Bethesda, MD 20894, Web Policies The online EIQ was developed using ANU Polling Online (APOLLO) in August 2013 (Link: https://apollo.anu.edu.au/default.asp?pid=7700) and was pilot tested with four patients in September 2013. endstream endobj 237 0 obj <>/Subtype/Form/Type/XObject>>stream 0.749023 g We thank the participants for completing the questionnaire (EIQ) and helping us to make this study possible. `asp8WT(\\H!CT $ endstream endobj 229 0 obj <>/Subtype/Form/Type/XObject>>stream endstream endobj 161 0 obj <>/Subtype/Form/Type/XObject>>stream Federal government websites often end in .gov or .mil. Impact of endometriosis on women's health: comparative historical data show that the earlier the onset, the more severe the disease. E\\y\FzFfP\.s=3sS#&U) E\i\\ 0.749023 g It could be used with all three recall periods or each period independently, because each has satisfactory validity and reliability. Part of PDF/A standard Maryam Moradi 2005;83(3):5739. American Society for Reproductive Medicine. Inclusion criteria were self-reported surgically-diagnosed endometriosis and ability to understand English. Careers. H*2T0T04&Ff eCollection 2020. This study aimed to develop and evaluate a questionnaire to measure the long-term impact of endometriosis on different aspects of women's lives. official website and that any information you provide is encrypted Endometriosis pain numeric rating scale (pain NRS) The Pain NRS was used to characterize endometriosis pain as an average pain score over the number of days when the subject reported NRS during the 35 calendar days immediately prior to and including the study visit date. Endometriosis is the most common cause of CPP in females, and diagnostic delay is over six years internationally. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). endstream endobj 258 0 obj <>/Subtype/Form/Type/XObject>>stream H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  The common identifier for all versions and renditions of a document. E\\y\FzFfP\.s=3sS#&U) endstream endobj 171 0 obj <>/Subtype/Form/Type/XObject>>stream 0 0 9.949 9.425 re government site. endstream endobj 183 0 obj <>/Subtype/Form/Type/XObject>>stream E\i\\ DeVon HA, Block ME, Moyle-Wright P, Ernst DM, Hayden SJ, Lazzara DJ, Savoy SM, Kostas-Polston E. A Psychometric Toolbox for Testing Validity and Reliability. `asp8WT(\\H!CT $ H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  1992;5(4):1947. Text 0 0 9.949 9.426 re However, limitations related to reporting and recall errors may apply because of the self-reported and retrospective nature of the EIQ. All items with a factor loading of 0.4 and above were retained. Fertil Steril. Metzemaekers J, van den Akker-van Marle ME, Sampat J, Smeets MJGH, English J, Thijs E, Maas JWM, Willem Jansen F, Essers B. BJOG. Practice Committee of the American Society for Reproductive Medicine (ASRM) 2014;101(4):927935. Streiner DL, Norman GR. Epub 2022 Aug 18. https://doi.org/10.1007/s11136-010-9640-6. }, author={Masoumeh Namazi and Armin Zareiyan and M Asghari Jafarabadi and Zahra Behboodi Moghadam}, journal={Journal of gynecology obstetrics and . `asp8WT(\\H!CT $ `asp8WT(\\H!CT $ 0 0 9.949 9.426 re This section explores the effects of endometriosis and treatment on . The Women's Health Symptoms Study (WHSS) WHSS is the first prospective epidemiological study, at a global level, to investigate the potential of a symptom-based questionnaire to predict the diagnosis of endome-triosis. external Text Endometriosis Symptom Questionnaire Pelvic pain can be a symptom of endometriosis, which occurs when tissue that lines a woman's uterus during the menstrual cycle grows outside of the uterus. f The results indicate that the EIQ has very good test-retest reliability. f endstream endobj 145 0 obj <>/Subtype/Form/Type/XObject>>stream 0 0 Some infertility reasons have been connected to ovarian inflammation. `asp8WT(\\H!CT $ The EIQ is the first questionnaire to measure multi-dimensional impacts with a long-term view. endstream endobj 151 0 obj <>/Subtype/Form/Type/XObject>>stream DHooghe T, Hummelshoj L. Multidisciplinary centres/networks of excellence for endometriosis management and research: a proposal. f 0.749023 g endstream endobj 185 0 obj <>/Subtype/Form/Type/XObject>>stream 2001 Aug;98(2):258-64. doi: 10.1016/s0029-7844(01)01433-8. endstream endobj 201 0 obj <>/Subtype/Form/Type/XObject>>stream This study aimed to develop a valid and reliable patient-centeredness . Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. A correlation of endometriosis with placenta previa (odds ratio from 1.67 to 15.1 according to various studies) has been demonstrated, possibly linked to the abnormal frequency and amplitude of uterine contractions observed in women affected. H237402VH2P0P4&F E\\y\FzFfFP\.s=3s#(&Q/ Content validity of the 89-item EIQ was based on seven out of 14 experts and six out of 12 patients ratings. The psychometric properties of the final 63 item EIQ were evaluated through a web-based survey with data from 423 responders with a self-reported surgically-diagnosed endometriosis. 0 0 9.949 9.425 re endstream endobj 261 0 obj <>/Subtype/Form/Type/XObject>>stream `asp8WT(\\H!CT $ Part of Namazi M, Zareiyan A, Jafarabadi M, Behboodi Moghadam Z. J Gynecol Obstet Hum Reprod. http://ns.adobe.com/pdfx/1.3/ http://springernature.com/ns/xmpExtensions/2.0/seriesEditorInfo/ volume19, Articlenumber:64 (2019) Cronbach's alpha for each recall period of the EIQ was 0.97 across the 63 items, indicating very good reliability. H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  Oxford University Press; 2008. H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  endstream endobj 152 0 obj <>/Subtype/Form/Type/XObject>>stream Gives the ORCID of an author. internal GTS_PDFXVersion E\\y\FzFfP\.s=3sS#&U) The final 63-item EIQ contained six dimensions including: 33-item physical-psychosocial; 3-item fertility; 7-item sexual; 11-item employment; 6-item educational; and 3-item lifestyle. f 0 0 9.949 9.425 re H*2T0T04&F Introduction. Text E\\y\FzFfFP\.s=3s#(&Q/ H*2T0T04&F internal H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  We have now developed and evaluated the psychometric properties of a questionnaire to measure the longer-term impact of endometriosis on different aspects of womens lives. sharing sensitive information, make sure youre on a federal The women reported that their first endometriosis-related symptoms were experienced at a mean age of 17.4 6.8 years (range: 11-41), and diagnosis was made at 25.6 7.9 years (range: 15-42), with an average of 8.1 6 years (range: 3 months - 24 yrs) delay in diagnosis of endometriosis. Results showed good reliability in all dimensions but the physical-psychosocial dimension had the highest and the lifestyle dimension had the lowest Cronbachs alpha for all three recall periods. The burden of endometriosis: costs and quality of life of women with endometriosis and treated in referral centres. 0.749023 g J Adv Nurs. 2. endstream endobj 165 0 obj <>/Subtype/Form/Type/XObject>>stream http://www.readabilityformulas.com/ . endstream endobj 209 0 obj <>/Subtype/Form/Type/XObject>>stream f 0.749023 g <>stream https://doi.org/10.5301/je.5000222. Many groups and people (like endometriosis centres and endometriosis support groups) were asked to assist by forwarding an invitation email to their databases and/or by putting flyers in their centres or on their website/Facebook pages. endstream endobj 221 0 obj <>/Subtype/Form/Type/XObject>>stream Existing tools only asses a subset of QOL indicators, and measure disease impact with a perspective of four weeks or less. According to one study, SUA levels have an impact on the quality of semen and male infertility . Because of the chronic and recurring nature, many of the impacts of endometriosis could be missed using, Journal of Obstetrics, Gynecology and Cancer Research. J Am Med Inform Assoc. Epub 2020 Jul 8. The process used to validate the EIQ was to some extent similar to the one employed for the ECQ [14], however the development processes were different. internal endstream endobj 179 0 obj <>/Subtype/Form/Type/XObject>>stream %PDF-1.4 H*2T0T04&Ff Study 1: a short form version of the Endometriosis Health Profile-30 core questionnaire was developed. 0 X)A Chauvet P, Auclair C, Mourgues C, Canis M, Gerbaud L, Bourdel N. J Gynecol Obstet Hum Reprod. However, to have consistent factor dimensions, it was decided to include the physical items into the physical-psychosocial dimension. The initial EIQ had randomly-ordered items to avoid hypothesised factor structure. Your answers to these questions can then be summed to give you a final score. Churchill Livingstone: Elsevier; 2014. It could also be used as a burden-estimation or needs assessment tool to provide information for making health policy decisions to improve services. 2011;96(2):36673 e368. 2011;3(1):97110. MM and VL completed analysis. Created Date: 9/9/2016 10:09:23 AM 0.749023 g E\\y\FzFfFP\.s=3s#(&Q/ E\\y\FzFfP\.s=3sS#&U) H*2T0T04&F endstream endobj 253 0 obj <>/Subtype/Form/Type/XObject>>stream H*2T0T04&F f 2013;169(2):3926. The adequacy of a scale as a measure of a specific variable is an issue of validity [19]. 0 X)A LoBiondo-Wood G, Haber J. 2023 BioMed Central Ltd unless otherwise stated. 4th ed. 0 0 9.95 9.425 re 0.749023 g 3rd ed. Dissemination of the study link was focused inside Australia and 74% of responders to the online EIQ were born in Australia. <, BMC Women's Health, 2019, doi:10.1186/s12905-019-0762-x, The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of womens lives. 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